Sue

Today I found out my brother’s ex-girlfriend died.

She had a disease called Cerebellar Ataxia but what got her was pneumonia.

Her name is Sue and she and my brother have a son named Andy.

Andy has Cerebellar Ataxia too- he’s blind and can’t walk or control his facial muscles and it’s difficult for him to talk, he takes his food through a tube. He’s in his early 20’s and never learned to drive a car, he’s never traveled or had a girlfriend he loves the TV show “Friends”.

He’s in a nursing home.

That’s Andy’s life now- that’s what he grew up to do- to end up bedridden in a nursing home.

I really hate life today.

But that doesn’t mean I don’t intend to make the most of it- I intend to enjoy making every freaking damn second of it count.

For Andy and Sue.

5 thoughts on “Sue

  1. how terribly sad. it must have been heartbreaking for sue to know her son had the same disease.

    I hope the carers in his nursing home treat him with great compassion

    *hugs*

Leave a comment